First visit to the Rehab Institute tomorrow, if someone will quit barfing

[marydell]

We have an appointment first thing in the morning at the Rehab Institute of Chicago's Pediatric Limb Deficiency clinic, to discuss options for a prosthesis!  HOORAY! He's finally healthy enough, and has made enough developmental progress, that he may be ready for a limb.  Even if he's not, they're going to go over all the options with us, and hopefully also hook us up with a PT/OT in our area.  (We initially went through Illinois Early Intervention, who are great, but for various odd reasons it works out to be prohibitively expensive for us. Normally it's a good, affordable option, though, so I recommend checking out your state's early intervention program if you have a young child with a delay).

Anyway, this is very exciting...so exciting, in fact, that Charlie spiked up a 102 degree fever this afternoon, threw up three times early in the evening (once on his mommy), and had a terrifying meltdown with his daddy while mommy was out getting baby tylenol, since the motrin, it does nothing. 

His fever came down to 100-ish after he had the tylenol, and the crying stopped once he had apple juice and some cuddles from mom. If he's 100% well by morning, with a good appetite and no fever, we can still make the appointment.  It's a possibility, since he's had a mystery fever-from-nowhere before, but I won't call it a likelihood.

Comments

[marydell.livejournal.com]

We have funds, but EI apparently charges as a monthly service, instead of on a per-visit basis, and they said he'd only need to see someone monthly at the most. So the price-per-visit averaged out to be a lot more expensive than seeing a private PT/OT will be (since, as people with funds, we're quite appropriately ineligible for a fee break--their fees are on a sliding scale). With luck we'll be able to find someone who specializes in limb absence and prostheses but is reasonably near home.