marydell: My hand holding a medusa head sculpture (by me) that's missing its snakes (Default)
[personal profile] marydell
My kid's medical situation isn't as complicated or risky as SingleDad's daughter's situation, but this is a very useful model to follow in preparing emergency documentation for a child with special needs, and I'm going to get cracking on making something like this for Charlie right away: http://www.disableddaughter.com/?p=371

If your child has special medical needs that your backup people are not fully prepped for, something like this can help a lot to make sure they get what they need if you're sick or unavailable for a bit.

Date: 2011-07-21 06:42 pm (UTC)
From: [identity profile] noveldevice.livejournal.com
I have so many things I want to say about the tagline at the head of his blog... AUGH.

This is a great thing, though, and also good for adults with complicated medical schedules--if they get a concussion or an injury that stops them communicating, is there someone in the household who knows what they take and when? I bet not. I know that by the end I had lost track of everything Ranj was taking.

Date: 2011-07-21 06:58 pm (UTC)
From: [identity profile] marydell.livejournal.com
His tagline comes from something that all parents of SN kids hear--particularly those whose kids are profoundly disabled, like his--and he's a sarcastic guy, so a grain of salt goes with the tagline, for whatever that's worth.

We made my parents write up a list of Mom's meds after the last time Dad was in the hospital, because he typically helps her with remembering all of them and taking them. It helped a ton when he had to have surgery recently...

Date: 2011-07-21 07:06 pm (UTC)
From: [identity profile] noveldevice.livejournal.com
Yeah, I'm familiar--my AUGH is that people would even say that to someone, let alone often enough that putting it at the head of your blog seems like the thing to do. I've had people say similar things to me a couple of times, and I find it really, really angry-making.

Yeah, I bet. Ranj had a system for his because his memory was so bad, but my ability to take stuff on time is not good, so I was no help.

*

Date: 2011-07-21 11:58 pm (UTC)
From: [identity profile] browngirl.livejournal.com
*makes a note*

Date: 2011-07-22 02:37 am (UTC)
From: [identity profile] unhappytriad.livejournal.com
Thanks for this, and for leading me to Single Dad's blog. I've worked with some severely disabled kids (only one who might be as severely disabled as his daughter) so I've had the merest glimpse into just how much care one person can need. Wow.

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