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  <id>tag:dreamwidth.org,2010-06-08:522342</id>
  <title>Torrefaction</title>
  <subtitle>Change...the Hard Way</subtitle>
  <author>
    <name>marydell</name>
  </author>
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  <updated>2011-03-14T04:38:37Z</updated>
  <dw:journal username="marydell" type="personal"/>
  <entry>
    <id>tag:dreamwidth.org,2010-06-08:522342:22434</id>
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    <title>Well, foo.</title>
    <published>2011-03-14T04:19:55Z</published>
    <updated>2011-03-14T04:38:37Z</updated>
    <category term="charlie"/>
    <category term="singulair"/>
    <category term="asthma"/>
    <category term="reflux"/>
    <category term="cough cough cough"/>
    <dw:security>public</dw:security>
    <dw:reply-count>1</dw:reply-count>
    <content type="html">Charlie woke up at 1:30 am&amp;nbsp;(pre-DST-time)&amp;nbsp;and eventually went back to sleep at 5 am (post-DST time)&amp;nbsp;and stayed asleep until 9. Managed to have a playdate with only a couple of meltdowns, then took a nap (half an hour shorter than usual).&amp;nbsp; Don't recall if there was another meltdown after that or just generally being an asshole - in either case there was hitting, biting, and scratching, also some pushing and bouts of clinginess.&amp;nbsp; In between all that he took a bath without complaining and was cheery and hypomanic in phases.&amp;nbsp; &lt;br /&gt;&lt;br /&gt;On the good side, this has shown us pretty definitively that his aggressive and&amp;nbsp;moody behaviors come from being tired, period.&amp;nbsp; The fact that some drugs make him extra tired (benadryl) and that tiredness makes him less verbal also play a part.&amp;nbsp;&amp;nbsp;Based on what we've seen over the last month,&amp;nbsp;we can say&amp;nbsp;with confidence that good sleep equals good behavior.&amp;nbsp; This is huge because it means he doesn't have a neurological/developmental problem, or at least not a serious one. &lt;br /&gt;&lt;br /&gt;On the bad side, Singulair goes on the&amp;nbsp;no list, because these recent sleep disturbances appear to be tied to taking it.&amp;nbsp; We stopped giving it today (we had been giving it in the morning, to better monitor its effects and to try to separate it somewhat from sleep, to no avail apparently).&amp;nbsp; If he's in clear need of it we can probably give it for 3 days or so, but we can't use it for regular maintenance. (We use albuterol for rescue bronchodilation during a flare, but the idea of the other drugs is to prevent flares from happening at all) &lt;br /&gt;&lt;br /&gt;On the other good side,&amp;nbsp;there's a possibility that the asthma improvement we've been seeing is really down to taking Tums twice a day, rather than due to things he reacts badly to.&amp;nbsp; This isn't entirely absurd, because he does have a history of reflux, and his asthma typically manifests as a cough with eventual&amp;nbsp;vomiting, which&amp;nbsp;could easily be GERD.&amp;nbsp; Also he's been eating us out house and home all week, coinciding with the Tums regimen. &lt;br /&gt;&lt;br /&gt;Now I&amp;nbsp;have to decide if my asthma doctor should continue to be his asthma doctor, or if we should go back to the overly busy other asthma doctor who is a genius-by-reputation and was on Mystery Diagnosis and is the regular pulmonolgist at the local Children's hospital.&amp;nbsp; They both do pediatrics but that's his specialty; her approach to immunology is more to my liking, but his approach to prescribing is a little more nuanced.&amp;nbsp; Before I take him back to either, though, we'll be seeing the GI specialist, which will inform the rest of the approach, I&amp;nbsp;hope. &lt;br /&gt;&lt;br /&gt;Meanwhile I&amp;nbsp;really hope Singulair has a short half-life!&amp;nbsp; Because this up-in-the-wee-hours horseshit has worn out its welcome, for serious.&lt;br /&gt;&lt;br /&gt;&lt;img src="https://www.dreamwidth.org/tools/commentcount?user=marydell&amp;ditemid=22434" width="30" height="12" alt="comment count unavailable" style="vertical-align: middle;"/&gt; comments</content>
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