Om nom nom

Oct. 11th, 2010 11:55 am
marydell: My hand holding a medusa head sculpture (by me) that's missing its snakes (charlie-washcloth)
Speaking of soy, here is a video of Charlie noshing on some soy butter.  He's not going near a peanut until he's 4 years old, with so many sensitivities already.



He's still working on the talky talky but as you can see he's mastered the basics. (Om nom nom is what I say when I am eating his toes, of course. )

Um, I do occasionally comb his hair. Honest!
marydell: My hand holding a medusa head sculpture (by me) that's missing its snakes (charlie-animals)
This Ipod doohickey that I won has an integrated video camera. W00t! The lens is in a totally thumbtastic location, so my shots look like pictures my dad took when I was a kid--oops--but the picture quality is nice for a little bitty thing.  And the teeny-ness means it's easy to keep in my pocket for those impromptu shots. Now to just work on the thumb situation. Uh, also after viewing these I trimmed his weird pointy bangs; wtf was going on there? Home haircuts FTW...sometimes.





Note: my moose of a boy is 27 months old tomorrow, not 4 years as you might think from looking at him. My poor back...
marydell: My hand holding a medusa head sculpture (by me) that's missing its snakes (charlie-laugh2)
Here's a video demonstrating the creepiness of the Leapfrog laptop.

Charlie loves it even more now that I've set it up to say his name, of course. 


Link here for those who prefer non-embedded vids.
marydell: My hand holding a medusa head sculpture (by me) that's missing its snakes (Default)
This is the song they play when the Blackhawks score, or have a parade, or what have you.  It will never, ever, ever stop being stuck in my head after the past few days.  Fortunately it's a good song.  Also the video is full of pretty burlesque girls, so +1 for those of us who like that sort of thing. Cut in case burlesque girls are not your thing )

marydell: My hand holding a medusa head sculpture (by me) that's missing its snakes (charlie-washcloth)
Rather than try to do a whole developmental roundup, I'm going to do small ones on one thing at a time, because otherwise I'll never get around to it, and I do want this blog to be useful to parents of other kids with challenges similar to Charlie's.  

So, he's significantly delayed on speech, but the docs think it's a "soft delay" (one that should eventually resolve itself) brought on by temporary hearing troubles and over-dependence on his pacifier.  Also he stayed in the infant room at day care a lot longer than he would have if he had been walking on the expected (by day care) schedule.  Now that he's in the toddler room surrounded by talkers, he's got about 6 words that he uses regularly, at least when prompted, and 15 or so that we hear from time to time.  Plus a lot of babbling.  We blew bubbles out in the yard yesterday and he said "bubble bubble bubble!" over and over, and he understands that "bubble" and "ba-ba" are different words.  He also understands complex sentences, like "can you put the clothes back in the drawer now?" and "I want you to come over here and take your medicine without a fuss...one....two...three...ok, now we do this the hard way..."  He hasn't said any sentences, even short ones, consistently but he's making progress.  We're up in the air about speech therapy--we'll see how he does over the next couple of weeks.  He's making good progress, finally, but he's frustrated a lot of the time and can be aggressive (particularly with Mommy, boo), and having almost no words can't be helping.

We made a little video of him showing off his words.  He has not seen the Simpsons, by the way, but has picked up a bit of its vocabulary from us, because we are Simpsons nuts.

Video: 

Achoo!

May. 4th, 2010 10:51 pm
marydell: My hand holding a medusa head sculpture (by me) that's missing its snakes (charlie-laugh)
Because [livejournal.com profile] pnkrokhockeymom demanded it, here is a video of Charlie fake-sneezing.  Whenever I sneeze, he fake-sneezes and laughs (This is an improvement on his previous reaction, which was crying and clinging to me in fear).  Here I am fake-sneezing too, for the benefit of the camera, but this being springtime, I real-sneeze all the time, which makes for an amused (and amusing) toddler.  Coughing usually elicits more fakery but here he is too busy cracking up to bother with that.

non-HD-quality video is here if your browser doesn't like the embedded HD vid below.



marydell: My hand holding a medusa head sculpture (by me) that's missing its snakes (charlie-laugh)

We think "guh-GUH-guh" is Charlie-speak for "Gorilla" but we're not sure (he has sometimes said it when he wanted us to read "Good Night, Gorilla.")  He's only got a couple of words thus far (sigh) but recently he's starting to play more with baby talk.  At the beginning of this conversation we were both saying 3 syllables but he modified it to Guh GAAAH to amuse himself.  Or because he's trying to tell me something in Charlie-speak that I'm not getting!


[embedded video of me and Charlie saying Guh GUH Guh]
marydell: My hand holding a medusa head sculpture (by me) that's missing its snakes (Default)
Found on youtube - an adorable lamb:

And a terrifying (but non-violent) dog that is going to haunt my dreams (and yours, if dogs scare you - warning!): Linked, not embedded, because of the scary
marydell: My hand holding a medusa head sculpture (by me) that's missing its snakes (charlie-laugh)

Charlie Walks, originally uploaded by thrawn150.

Charlie walked independently today, hooray! He's 20 months old, and has been working on this in PT for a few months. His absent forearm & hand made pulling up more difficult, as well as making balancing harder. But his unusual tallness (35") has been almost as much of an issue...a high center of gravity, and a long way to fall, makes for a timid toddler. But we've managed to make it seem fun, with a lot of cheering and hugs and so on, and he's gradually becoming more confident. YAY WOO CHARLIE WOOO!

marydell: My hand holding a medusa head sculpture (by me) that's missing its snakes (charlie-laugh)
Charlie wears his prosthetic arm for about 3 hours a day (not all day because he's pretty good with his "armlet" and we want to retain & expand those skills).  Mostly he's fairly passive with it, which is still useful because the weight will help his back  and shoulder to develop properly, and improve his balance.  But we're trying to get him to interact with it more.  Here I've put a pacifier in the hand, and am amusing him by saying "yoink!" when he pops it out of his mouth (because that's what I say when I steal a pacifier from him, because I am Simpsons fan.)

marydell: My hand holding a medusa head sculpture (by me) that's missing its snakes (Default)
Here's Charlie testing out his prosthetic arm for the first time, while we and the RIC team try to decide if he should have a fixed elbow or a ratcheting hinge elbow.



Normally they want the kids to learn one joint at a time, so they start with a hinged thumb and a fixed elbow and then when he's learned to work with a wired thumb (that opens and closes through movement in a shoulder harness) they move on to a wired elbow. But the occupational therapists wanted to see how he'd do with a ratcheting elbow, that locks into 3 or 4 positions and then unlocks when it's bent all the way in to the shoulder. Based on how well it seemed to work when Charlie was crawling with it, we and the RIC team opted for the ratcheting elbow. It was cool to see the discussion and decision making process between the prostheticist and the OT who came to this session--they were very respectful and took turns explaining their thinking on the subject, and although the prostheticist was leaning away from the idea of the ratcheting elbow at first, she made up the arm with one for testing and after she saw him with it she was convinced and helped to convince us. Across the board, the people who are working with Charlie on this are really talented and professional, and everyone's been very flexible and seems excited to work with him. Toddler upper-limb prosthetics are still kind of unusual, particularly with elbow involvement--it's much more common, apparently, to be born missing a hand than to be missing both the hand and the elbow. So everyone we talk to is jumping at the chance to see and/or work with Charlie, which makes everything much easier.

The dinosaur-embellished version of the arm will be ready in a couple of weeks, when we go for his final fitting. What he's wearing here is the inner layer but there will be an outer layer that covers most of the hinge.
marydell: My hand holding a medusa head sculpture (by me) that's missing its snakes (charlie-chair)
Charlie shows off some of his crawling and scootching skills as he checks out the new kitchen floor (The old one was so jacked-up he wasn't allowed on it...the house is kinda old). He's also learning to climb into my lap. Warning: cuteness!

marydell: My hand holding a medusa head sculpture (by me) that's missing its snakes (Default)
The "Literal Video Version" of  "Total Eclipse of the Heart" *


*Tori Amos did an awesome cover of this on one of her bootleg albums, by the way.


marydell: My hand holding a medusa head sculpture (by me) that's missing its snakes (Default)
(Shield your eyes and your uterus, [livejournal.com profile] pnkrokhockeymom!  This will give you potentially lethal baby fever)

Happy Chinese New Year, everybody!  Here is Charlie playing with my bobblehead of a chubby baby riding a fish, which is a traditional <a href="http://www.zitantique.com/chubby1.html">New Year's poster (Nian Hua) motif.</a> 



More viddies here: http://www.flickr.com/photos/marydell/sets/72157612957958204/
marydell: My hand holding a medusa head sculpture (by me) that's missing its snakes (Default)
Everyone else posts their favorite youtubery in their blogs, so I'm going to jump on the bandwagon! However, I don't like coy linkage so I'm going to be all crazy and actually tell you what this video is before you click it.

This is Kate Bush and David Gilmour doing "Running Up That Hill" live. The synth parts from the album track are done here by Gilmour on guitar. Joy.


Normal link here.

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