marydell: My hand holding a medusa head sculpture (by me) that's missing its snakes (charlie-washcloth)
Charlie is making reasonable progress with talking, after not bothering for most of his young life. He's in the 2-year-old room at day care now, so there is a lot more talking in general, and we're seeing that reflected at home.  He's also starting to enjoy playing around with vocalizations. He understands complex stuff like "can you go in the kitchen and put that on the counter?" but doesn't make sentences himself yet.

Here are the words he's saying so far, not counting random attempts to repeat words said by mommy and daddy, and the fairly complex not-really-words sentences he tosses around from time to time.

choo-choo
ba-ba (meaning bottle. He said it normally for a while; now he says it in a funny gravelly voice and laughs)
mommy
da-da
meow
arf
bye
hi
no
yeah
okay
uh-huh
something that sounds like pickle pickle pickle
bubble
outside
hot dog
grandma
juice
rawr (noise made by toy lions, tigers, and dinosaurs)
tay-tay (nickname of a classmate)
yay!
thank you
marydell: My hand holding a medusa head sculpture (by me) that's missing its snakes (charlie-washcloth)
Rather than try to do a whole developmental roundup, I'm going to do small ones on one thing at a time, because otherwise I'll never get around to it, and I do want this blog to be useful to parents of other kids with challenges similar to Charlie's.  

So, he's significantly delayed on speech, but the docs think it's a "soft delay" (one that should eventually resolve itself) brought on by temporary hearing troubles and over-dependence on his pacifier.  Also he stayed in the infant room at day care a lot longer than he would have if he had been walking on the expected (by day care) schedule.  Now that he's in the toddler room surrounded by talkers, he's got about 6 words that he uses regularly, at least when prompted, and 15 or so that we hear from time to time.  Plus a lot of babbling.  We blew bubbles out in the yard yesterday and he said "bubble bubble bubble!" over and over, and he understands that "bubble" and "ba-ba" are different words.  He also understands complex sentences, like "can you put the clothes back in the drawer now?" and "I want you to come over here and take your medicine without a fuss...one....two...three...ok, now we do this the hard way..."  He hasn't said any sentences, even short ones, consistently but he's making progress.  We're up in the air about speech therapy--we'll see how he does over the next couple of weeks.  He's making good progress, finally, but he's frustrated a lot of the time and can be aggressive (particularly with Mommy, boo), and having almost no words can't be helping.

We made a little video of him showing off his words.  He has not seen the Simpsons, by the way, but has picked up a bit of its vocabulary from us, because we are Simpsons nuts.

Video: 

marydell: My hand holding a medusa head sculpture (by me) that's missing its snakes (mama 2)
As much as I enjoy reading other parents' developmental updates about their little ones, I've never done one for Charlie.  I intended to do them monthly, at the beginning, but because of the way his delays have happened I didn't have the heart for it.  We expected delays in gross & fine motor skills, and we were lining up a therapist to work on those with us when he was about 2 months old.

Cut for possibly-distressing stuff about itchy, sick, unhappy baby )

Therefore!  Later today or tomorrow I'll do a proper developmental post like a proper mommy blogger.  Whee!
marydell: My hand holding a medusa head sculpture (by me) that's missing its snakes (charlie-laugh)
We finally got Charlie moved up to the toddler room at day care today.  He *can* walk, but he mostly doesn't, preferring to go around upright on his knees.  We convinced daycare that he's sufficiently mobile to be in the room with the toddlers without needing a separate aide to protect him from getting stepped on or what have you. (They would provide one if we got an IEP specifying that, but we don't want to go that route at this point--we think he will be fine with just the normal level of supervision).  We'll back that up with a doctor's note so the daycare has what they need to stay within DCFS guidelines, but they went ahead and moved him today ahead of getting the note--YAY! 

We're hoping that being in a room full of walkers will encourage him to walk more.  Certainly he'll be happier among his peers and friends--he had been visiting them some, so he knows the kids already, and some of them were in the infants' room with him last year, too.  He loves playing with them, and the toys in the toddler room are appropriate for his age and size, etc.  The flip side is that he's probably going to get hurt, because toddlers are rough...but *he's* a toddler, and is just as likely to smack another kid (even though he's friendly) as another kid is to smack him.  No kid gloves for our boy, even though that's how the director of the daycare is inclined to treat him.  That's somewhat typical of folks supervising disabled kids in a mostly-abled-kids environment, but it doesn't do the kid any favors in the long run.

So, my big boy finally went to the toddler room for a full day and did regular toddler stuff along with the rest of the gang.  According to the director, they played outside and he got to play on one of their tricycles, which delighted him (as does his trike at home).  Then all the kids came back in and walked down the hall in formation, like they always do.  They had him up at the head of the group and he got down on his knees to go down the hall.  All the other kids looked at him and decided that was a great idea, apparently, because they all got down on their knees too, and the whole group went back to the room that way.

His first day, and he's already got the whole class backsliding on their motor skills! Ah, that's my boy.

marydell: My hand holding a medusa head sculpture (by me) that's missing its snakes (charlie-laugh)

Charlie Walks, originally uploaded by thrawn150.

Charlie walked independently today, hooray! He's 20 months old, and has been working on this in PT for a few months. His absent forearm & hand made pulling up more difficult, as well as making balancing harder. But his unusual tallness (35") has been almost as much of an issue...a high center of gravity, and a long way to fall, makes for a timid toddler. But we've managed to make it seem fun, with a lot of cheering and hugs and so on, and he's gradually becoming more confident. YAY WOO CHARLIE WOOO!

marydell: My hand holding a medusa head sculpture (by me) that's missing its snakes (Default)
Here is the official Fisher-Price toddler playing with the Fisher-Price musical table:

...and here is my toddler playing with it.
IMG_2626

Getting him to start standing up (something he just started doing regularly) would have been a bit easier if one or two of the "stand to play" toys required him to, ya know, stand up.
More pics & tales of standing up )

April 2013

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